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Understanding Dysautonomia

Dr. Blair Grubb explains it this way: Think of your brain as being like a thermostat. The thermostat in your house "automatically" tells your heating system to turn on and off in response to changes in temperature. Once you set the thermostat you don't have to think about it anymore because it works automatically. If your furnace suddenly wasn't putting out the heat needed to keep you warm you would think that something was wrong with the furnace - because all you know is that you're cold. If a repair person came in and checked out your furnace you would be told that it is working fine and that nothing is wrong with it. But actually the "specialist" or repair person has to understand heating systems enough to think to check the thermostat next and see if it is working right. Then he has to know how to fix the thermostat you have (you may be able to get a new thermostat for your heating system, but in real life you can't just get a new brain for your autonomic nervous system).

Interesting analogy. Most doctors just want to fix the furnace (that's all they have been trained to do) and never give much thought to the "controls". They haven't been taught about the controls (thermostat) so when they can't fix the furnace, they blame it on the controls. The control person only works on controls and doesn't deal with furnaces, so it is very hard to find people who do both and understand the real problem.



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